Back in 2012, after seeing The World of One Room on YouTube and Facebook, Jen Brea approached me to see if I’d like to feature in a film documentary, (at the time called Canary in a Coal mine) about M.E. I agreed and what a journey it has been! It was renamed Unrest to give […]
Unrest Premiere and Parliamentary Screening… Read More »
I had a massive surprise when a charity called Freedom for Wheels decided to do just that, giving freedom to me through a set of wheels! As described in a previous blog The Power of Wheels, I found my wheels a couple of months ago due to a fluke phone call. Since that
Thank You Freedom for Wheels… Read More »
This week, the news that Selena Gomez had been recovering from a kidney transplant due to complications with her chronic condition Lupus was released into the media world by Selena herself. I have many friends with Lupus who gave a sigh of relief that somebody who was incredibly famous was talking about her Lupus. It
Bravery comes in many different forms Read More »
Three years ago, I started a project called #FortheFirstTime and I documented my firsts since I had become unwell on my Facebook page The World of One Room. The experiences I was having was as if I had started life again. When you are seriously chronically unwell, it’s important to not lose hope of what
For the First Time…. Read More »
A Girl Behind Dark Glasses is the most important story I have ever come to write. It contains storylines that go to the very heart of my complex life, going further than I have ever let people go. For that very reason, I have had to make the difficult decision to delay the publishing date.
A Girl Behind Dark Glasses Important Update Read More »
Going abroad is only a recent but wonderful discovery of mine. Being able to do something in a completely ME and disabled friendly way is very rare, and an absolute blessing too. It’s never easy weighing up your health against living, but I think that there has to be a balancing act. Being able to
The Power of Wheels The National Health Wheelchair Service for the UK refused to give me the freedom of going in a wheelchair so I could get outside my room. I was apparently too unwell and they didn’t see it as a good investment in their funds. Surprisingly, this was when the service was actually
The Power of Wheels… Read More »
During a lot of my hospital stays, I’ve been unable to communicate for a large majority of the time. Particularly at the beginning of my four year stint in hospital, this was a huge problem for me. At these times, I feel patients in hospitals are at their most vulnerable. If you are not able
The Voice of the Voiceless When In Hospital Read More »
It seems like it has been forever since I last updated this page. Facebook has been having a go at me for it being so long since I last posted, but here is the reason why: A few things have happened that have caused me to be quite quiet on the whole social media part
The Arrival of Auntie Jolly… And a Update on Me too… Read More »
On my very first edition of A Girl Behind Dark Glasses, I wanted to bring accessibility to our impact plan, so everyone had a chance to read the book – or listen – whatever the case may be! During our Kickstarter campaign, I made it clear that for other people including myself, it was crucial
A Girl Behind Dark Glasses Audiobook Pre-order Read More »