It’s been a while since I have posted a blog…my greatest apologies! My health has not been great so I’m trying to start again this new year with my second week of antibiotics on top of prophylactic antibiotics. (I’ve been on the latter for a while to try and break the cycle of UTIs that […]
Back in 2012, after seeing The World of One Room on YouTube and Facebook, Jen Brea approached me to see if I’d like to feature in a film documentary, (at the time called Canary in a Coal mine) about M.E. I agreed and what a journey it has been! It was renamed Unrest to give
Unrest Premiere and Parliamentary Screening… Read More »
I had a massive surprise when a charity called Freedom for Wheels decided to do just that, giving freedom to me through a set of wheels! As described in a previous blog The Power of Wheels, I found my wheels a couple of months ago due to a fluke phone call. Since that
Thank You Freedom for Wheels… Read More »
This week, the news that Selena Gomez had been recovering from a kidney transplant due to complications with her chronic condition Lupus was released into the media world by Selena herself. I have many friends with Lupus who gave a sigh of relief that somebody who was incredibly famous was talking about her Lupus. It
Bravery comes in many different forms Read More »
Three years ago, I started a project called #FortheFirstTime and I documented my firsts since I had become unwell on my Facebook page The World of One Room. The experiences I was having was as if I had started life again. When you are seriously chronically unwell, it’s important to not lose hope of what
For the First Time…. Read More »
Going abroad is only a recent but wonderful discovery of mine. Being able to do something in a completely ME and disabled friendly way is very rare, and an absolute blessing too. It’s never easy weighing up your health against living, but I think that there has to be a balancing act. Being able to
The Power of Wheels The National Health Wheelchair Service for the UK refused to give me the freedom of going in a wheelchair so I could get outside my room. I was apparently too unwell and they didn't see it as a good investment in their funds. Surprisingly, this was when the service was actually
The Power of Wheels… Read More »
BBC South East Today visited me on Monday 8th May for a quick update on how I was getting on. The below Video is taken from BBC News.
BBC South East Today Update Read More »
Published on YouTube Aug 25, 2012 A personal story of a young girl growing to a young woman suffering with the severest form of this debilitating neurological illness. A message of hope and a belief in recovery with a plea for us not to forget ME – it’s time the world woke
The World of One Room Read More »
Taken from: www.meaction.netBy Adriane TillmanJessica Taylor-Bearman has written a book called “A Girl Behind Dark Glasses” about her “forgotten years” of having severe Myalgic Encephalomyelitis (ME) for 11 years since the age of 15. Her book focuses on the four years she spent hospitalized during which she was unable to speak, eat or move for
Eleven Years with Severe ME – A Young Woman Writes Her Story Read More »