It is National Loneliness Week and I want to talk about how loneliness has affected me within my M.E. journey. When I first became chronically unwell, my life changed dramatically. I had been a very sociable 14-year-old, who enjoyed school and being with my friends. The truth was, I didn’t have that energy to spare […]
Dear Bug… The Loneliness of the M.E. Monster Read More »
Last week was an emotional one. We were looking after my brother and sister-in-laws cats for a week, whilst they were on holiday. It gave us a chance to not completely follow a routine. I don’t think I’ve done this since I’ve been home from hospital with care. So that would be 9 years. It’s
Dear Bug… B is For Bath Read More »
It’s not often that you get an invitation to the Queen’s Garden Party… So I was pretty shocked to get the letter through the post! I was invited for my charity work and raising awareness for severe M.E. It came in the thickest card I have ever seen and was really quite special. I thought
Dear Bug… A Royal Occasion Read More »
When I became unwell in 2006, I literally thought that like any other virus or bug I had previously got, it would just get better quickly and I would be back to my old tricks soon enough. I never thought it was going to be a seriously life changing condition that would be with me
Dear Bug…What is the Future like? Read More »
As soon as I found out I was expecting, I did everything I could to get as much support as was humanely possible, to make sure the baby and I were going to be safe. Within minutes of finding out, I was on the ball, calling my doctor’s surgery, the midwife number, my M.E. doctor,
Dear Bug… I am Speaking Out! Read More »
There was an overwhelming response to my pregnancy news. Rightly so, despite being happy for me, there was a lot of concern as to how my M.E. would be affected. A lot of people were interested in what the journey of being pregnant and suffering from a chronic illness like M.E. would be like… so
Dear Bug… What About Physiotherapy? Read More »
The weeks have been flying by and as of today, I am officially 20 weeks gone! It has been strange because my general M.E. has improved a little bit overall. I can walk around the downstairs of my house (with support) and have been able to play the piano. I even ventured for a walk
Dear Bug…We are Halfway There! Read More »
Wednesday 14th November 2018 was the day to conquer fears. I’ve always been petrified of heights. When I was younger and not unwell, I remember going to Cornwall for a week, one of the activities was to abseil off a 250ft cliff. I sat on the edge of the cliff for half an hour crying
My escapades with the change of drugs reached fever pitch three weeks ago, when I rang up the doctors with a blood pressure of 80/50….The dearest junior doctor had told me or more like made me promise that if my blood pressure went under 90/60, that I’d ring for an ambulance. That would be ridiculous,
Dear Bug… When The Nights Are Long… Read More »
A good friend once told me that it will be even harder to get better than it is to get ill. At the time, this news was hard to begin to fathom. However, now I understand what her point was. When you are extremely unwell, there is nothing you can do to change the situation.
Dear Bug… I Feel a Bit Guilty and I Don’t Know Why Read More »