Why is it that just because we suffer with an invisible disease do we have to constantly prove our mental health status? Or it goes the other way round for people who ARE mentally unwell, they have to prove they are mentally unwell enough to receive help or understanding! It’s ludicrous! Then there is the […]
Saving Myself and All That Jazz Read More »
The delicate balance between a crash and a success. It’s a fine line and can feel like you are walking a tightrope but it’s a tightrope that persists to be with you every second of everyday. Each person has some form of a tightrope but it is very different for those who are chronically or
Getting the Balance Right Read More »
The World Of One Room Vlog:1 https://youtu.be/jW6trdV9TlsThe World Of One Room Vlog:2https://youtu.be/IpTa-rVPa4s[sharethis-inline-buttons]
A Girl Behind Dark Glasses Kickstarter Rewards Update Vlog:1-2 Read More »
Ever since I was a little girl I dreamed of having a family. A child. Children. Unconditional love for a little person. Even when I got ill, I was naive because I always held onto the fact that I would just get better, that is what doctors do, right?! I held onto this idea through
My Ultimate Question Read More »
It’s been a while since I have posted a blog…my greatest apologies! My health has not been great so I’m trying to start again this new year with my second week of antibiotics on top of prophylactic antibiotics. (I’ve been on the latter for a while to try and break the cycle of UTIs that
Back in 2012, after seeing The World of One Room on YouTube and Facebook, Jen Brea approached me to see if I’d like to feature in a film documentary, (at the time called Canary in a Coal mine) about M.E. I agreed and what a journey it has been! It was renamed Unrest to give
Unrest Premiere and Parliamentary Screening… Read More »
I had a massive surprise when a charity called Freedom for Wheels decided to do just that, giving freedom to me through a set of wheels! As described in a previous blog The Power of Wheels, I found my wheels a couple of months ago due to a fluke phone call. Since that
Thank You Freedom for Wheels… Read More »
This week, the news that Selena Gomez had been recovering from a kidney transplant due to complications with her chronic condition Lupus was released into the media world by Selena herself. I have many friends with Lupus who gave a sigh of relief that somebody who was incredibly famous was talking about her Lupus. It
Bravery comes in many different forms Read More »
Three years ago, I started a project called #FortheFirstTime and I documented my firsts since I had become unwell on my Facebook page The World of One Room. The experiences I was having was as if I had started life again. When you are seriously chronically unwell, it’s important to not lose hope of what
For the First Time…. Read More »
Going abroad is only a recent but wonderful discovery of mine. Being able to do something in a completely ME and disabled friendly way is very rare, and an absolute blessing too. It’s never easy weighing up your health against living, but I think that there has to be a balancing act. Being able to