When I became ill, I was studying for my GCSEs and was loving education. However, I soon joined the thousands of teenagers who was unable to continue with school due to the severity of my M.E. I remember clearly when I first had to stop going to school that the first thing that my grammar […]
Dear Bug… What about School? Read More »
It is National Loneliness Week and I want to talk about how loneliness has affected me within my M.E. journey. When I first became chronically unwell, my life changed dramatically. I had been a very sociable 14-year-old, who enjoyed school and being with my friends. The truth was, I didn’t have that energy to spare
Dear Bug… The Loneliness of the M.E. Monster Read More »
Last week was an emotional one. We were looking after my brother and sister-in-laws cats for a week, whilst they were on holiday. It gave us a chance to not completely follow a routine. I don’t think I’ve done this since I’ve been home from hospital with care. So that would be 9 years. It’s
Dear Bug… B is For Bath Read More »
It’s not often that you get an invitation to the Queen’s Garden Party… So I was pretty shocked to get the letter through the post! I was invited for my charity work and raising awareness for severe M.E. It came in the thickest card I have ever seen and was really quite special. I thought
Dear Bug… A Royal Occasion Read More »
When I became unwell in 2006, I literally thought that like any other virus or bug I had previously got, it would just get better quickly and I would be back to my old tricks soon enough. I never thought it was going to be a seriously life changing condition that would be with me
Dear Bug…What is the Future like? Read More »
As soon as I found out I was expecting, I did everything I could to get as much support as was humanely possible, to make sure the baby and I were going to be safe. Within minutes of finding out, I was on the ball, calling my doctor’s surgery, the midwife number, my M.E. doctor,
Dear Bug… I am Speaking Out! Read More »
There was an overwhelming response to my pregnancy news. Rightly so, despite being happy for me, there was a lot of concern as to how my M.E. would be affected. A lot of people were interested in what the journey of being pregnant and suffering from a chronic illness like M.E. would be like… so
Dear Bug… What About Physiotherapy? Read More »
The weeks have been flying by and as of today, I am officially 20 weeks gone! It has been strange because my general M.E. has improved a little bit overall. I can walk around the downstairs of my house (with support) and have been able to play the piano. I even ventured for a walk
Dear Bug…We are Halfway There! Read More »
Wednesday 14th November 2018 was the day to conquer fears. I’ve always been petrified of heights. When I was younger and not unwell, I remember going to Cornwall for a week, one of the activities was to abseil off a 250ft cliff. I sat on the edge of the cliff for half an hour crying
My escapades with the change of drugs reached fever pitch three weeks ago, when I rang up the doctors with a blood pressure of 80/50….The dearest junior doctor had told me or more like made me promise that if my blood pressure went under 90/60, that I’d ring for an ambulance. That would be ridiculous,
Dear Bug… When The Nights Are Long… Read More »