The past couple of days haven’t gone to plan. Valentines Day and Samuel was in A&E then yesterday it ended up being me. I’ve had a very sharp stabbing pain in my back which has been making it challenging to take a deep breath and I woke up yesterday morning hardly able to breathe due […]
My Terrible Experience at A&E Read More »
So I’ve now been blogging on and off for ten whole years. I started my writing on my Facebook page and continued it on my website, but I’ve been writing for pretty much the entirety of my chronic illness journey (nearly 16 years now!), I just spent a lot of that time writing in my
Being a Chronically Ill Writer is Hard Read More »
I must be getting older because it feels like the years are passing even more quickly. 2021…where do I even begin? It has been a year of incredible – and very personal – highs mixed in with some lows that threatened to take the stuffing out of me. On a personal level, I moved house
Reflecting on 2021 Read More »
Oh my life. It seems somewhat ironic that on the day I was about to finish off my latest blog on being on the other side of an emergency, that I ended up being taken into hospital by ambulance with severe chest pain. It was odd because yesterday the tightness in my chest following a
I ended up being taken into hospital by ambulance Read More »
After writing this blog post on my phone nearly three weeks ago, I ended up having to scrap it because my brain was so fogged that I couldn’t think… Or move… Or breathe without being in immense suffering. I had just got the news that a much- awaited consultant appointment with rheumatology had been cancelled.
Do People Know What I mean When I Say “I’m in Pain”? Read More »
I’m used to living a very restricted life and even I’m struggling to manage. Before the pandemic hit us, I had started to venture outside more often and had managed to go in a shop. As you’ll see in my latest book, I didn’t even enter a shop for YEARS… I literally didn’t go into
I am Disabled and I Still Matter Read More »
I’m not a huge fan of Valentine’s Day but I get asked a lot about my relationship and thought this was the best time to mention it. I first met Samuel five and a half years ago after deciding to try doing some online dating. To be honest I didn’t really have a choice as
A Valentine Q&A with Samuel Read More »
This pandemic – and particularly the various lockdowns – has suddenly given the world a very slight dip into the ocean of what it is like to live with M.E.. I have lived this kind of an existence for over a decade (well fifteen years if you must know). Although my life has changed immeasurably
What I Hope the Pandemic Has Taught Us Read More »
I’ve been having to really pace my energy levels for the past few weeks, hence why I’ve been so quiet… Sorryyyyyy! For the past six months, my physical health has been challenging to say the least. My body just doesn’t seem to be able to manage too well with what I ask it to do.
The Invisible Scars I Face From My Medical Treatment Read More »
I’ve been a bit quiet with my blogging, and it’s not because I don’t have a lot to say, in fact it is the complete opposite. I feel completely overwhelmed with the situation, at a loss of where to start and what to say first. The situation of this pandemic has hit us all hard.
As Reality Hits Home Read More »