So if I were to say that in the space of one week, the Taylor-Bearman’s had been to A&E three times, once via ambulance with an internal bleed, once for a potential secondary bleed and the other time a doctor rang and said to get to a&e for urgent blood screening on the same day […]
A Ridiculous Blog on a Ridiculous Week Read More »
After writing this blog post on my phone nearly three weeks ago, I ended up having to scrap it because my brain was so fogged that I couldn’t think… Or move… Or breathe without being in immense suffering. I had just got the news that a much- awaited consultant appointment with rheumatology had been cancelled.
Do People Know What I mean When I Say “I’m in Pain”? Read More »
I’m used to living a very restricted life and even I’m struggling to manage. Before the pandemic hit us, I had started to venture outside more often and had managed to go in a shop. As you’ll see in my latest book, I didn’t even enter a shop for YEARS… I literally didn’t go into
I am Disabled and I Still Matter Read More »
I’m not a huge fan of Valentine’s Day but I get asked a lot about my relationship and thought this was the best time to mention it. I first met Samuel five and a half years ago after deciding to try doing some online dating. To be honest I didn’t really have a choice as
A Valentine Q&A with Samuel Read More »
This pandemic – and particularly the various lockdowns – has suddenly given the world a very slight dip into the ocean of what it is like to live with M.E.. I have lived this kind of an existence for over a decade (well fifteen years if you must know). Although my life has changed immeasurably
What I Hope the Pandemic Has Taught Us Read More »
2020 has been a horrendously hard year for everyone. The PM briefing on Saturday was just the tip of the iceberg. Having been promised a Christmas with family was one thing, but it was nothing short of cruel to have all those plans scuppered less than a week before the day. But this is not
The Reality of Christmas Read More »
I’ve been having to really pace my energy levels for the past few weeks, hence why I’ve been so quiet… Sorryyyyyy! For the past six months, my physical health has been challenging to say the least. My body just doesn’t seem to be able to manage too well with what I ask it to do.
The Invisible Scars I Face From My Medical Treatment Read More »
This blog was written a month ago when I had a burst of ideas for useful blogs to write about being a chronically ill mum. Unfortunately there have been quite a few things that have changed since I wrote it. The collapsing has become more often and the crashing has increased… But the pint still
How I am Physically Doing Since Having a Baby Read More »
When a woman has a baby, there is always a massive shift. My friends and family told me about the overwhelming unconditional love that flows through your body the moment your baby is born and how your life completely changes overnight. Even though I believed them, I don’t think I realised how much this is
How My Identity Changed Since Becoming a Mum Read More »
I don’t know about you but I have always wished I could have finish school. I always wonder what my life would be like if I had finished my education and gone to university to do my dream course of English literature and language.
My school had predicted great things for me, but they weren’t able to support me with my needs when I became chronically unwell. Pippa Stacey has written a book about University and Chronic Illness – a complete survival guide. I wonder whether my life would have been different if this had been in my life when I was in education…
So Pippa has written a blog for you all to read and hopefully we can push her book to be in all universities and schools!
A Guest Blog With Pippa Stacey Read More »